Once again, I find myself moved by Mr. and Ms. Bianchi’s openness. It’s wonderful that they understand how important Jules is for us, and how we just don’t forget. Remarkable people.
I’m pretty sure I speak for a lot of us if I say that Jules is never very far from any of our thoughts. And prayers.
Rehabilitation after severe head injury means a few things. Most importantly, it’s the rehab people who make sure that Jules’ limbs stay flexible, and that his muscles stay as toned as possible. Remember, a good part of our flexibility, and an even bigger part of our muscular health, are due to impulses from the brain that help maintain their growth and metabolic status. When those impulses aren’t incoming, a program of externally applied movement is important. Avoiding pressure sores is also close to a full-time job in anyone with restricted movement.
Respiratory rehab, especially since Jules is breathing on his own (brilliant news, as it’s one less machine to fail dangerously!), can be necessary, to help him cough and clear secretions.
As for brain-specific rehab, I’m at a total loss here. While the other aspects of rehab would presumably feed back body information (“proprioception”) to the brain (gotta help with maintaing plasticity), I don’t know if there are any effective and evidence-based techniques that improve outcome in this phase of severe head injury. It’d be fascinating if any specialists out there commented with info about this.
Lastly, and most importantly, I want to wish you all, EVERY ONE OF YOU, health and joy and warmth. Comfort for those who comfort. Calm after turmoil. You have all been part of this becoming something I had no idea would become as important to me as it has (ok, that sentence sucked. Forgive me, Ms. Dahlberg). Happy New Year to all of you, and let’s really make 2015 amazing!